Today our oldest son turns four! Today we are participating in the Bloggers Unite Fight for Preemies sponsored by March of Dimes. The two events falling on the same day isn’t a mere coincidence. While BigBrother was born at full term (38 weeks, 4 days), it was only by the medical research and science made possible by people who care enough about prematurity to do something about it.

During my first pregnancy with the Munchkin it was determined that I had a kidney disorder. I had two surgeries during that pregnancy in a futile attempt to fix what was wrong. I was put on bed rest at 18 weeks. I was rushed to the hospital via ambulance at 32 weeks with labor that wasn’t able to be stopped at our local hospital. Thanks to medical intervention (and lots of bed rest), she was born healthy and full term.

It was determined after Munchkin’s birth that I wouldn’t always have two kidneys and, as such, my child bearing years were numbered. While you can be pregnant with one kidney, my nephrologist said that it wasn’t in our best interest to attempt a pregnancy after the loss of the kidney, predicted to happen some time in my early 30′s. And so, we tried to conceive, successfully, shortly after we got married. The pregnancy was similarly complicated, minus a lights-and-sirens trip via ambulance. I made it to 30 weeks before I was put on bed rest. I had to take medicine daily in order to keep the contractions (and, as such, labor) at bay. I received steroid shots, twice, in order to mature BigBrother’s lungs. Like my pregnancy with the Munchkin, I was given statistics each week as to how likely he would be to survive if he was born during that week of gestation.

No mother should ever have to be aware of such statistics. It’s scary! I’m sure it’s meant to be reassuring but it’s scary. I am thankful, however, that there are scientists, doctors and researchers working to up the odds of each week.

As I said, BigBrother was born full term and quite healthy on this day four years ago. My right kidney completely shut down, I went toxemic and was induced to get him out as soon as possible. I am thankful for the doctors and nurses that worked so hard to give us a healthy experience.

Our family currently walks in the March for Babies every year (minus one). (LittleBrother’s story is similar except that I wasn’t induced as my kidney never completely shut down.) We are one of the lucky, success stories of what years of research have done. We are proof that miracles can and do happen. And yet we are all too well aware of how lucky we are. In addition to our complicated pregnancies, we have one unexplained miscarriage under our belt. More over, we are friends with far too many that have experienced later term miscarriage, stillbirth and the loss of their premature babies. We continue to support the work of the March of Dimes because we stand in solidarity with our friends and family in hopes that no one else ever has to endure such a loss. We stand as proof of the work that has been done while hoping, praying and supporting the work that needs to be done in order to ensure that the stories of loss become a thing of our past.

You can read others posts regarding the Fight for Preemies and experiences as to how prematurity has touched other lives. If you have a story, please share it. If you feel so inclined, donate to March of Dimes or read more about how you can participate.

We are so thankful. We are so blessed. We will continue to support the work that the March of Dimes does.

Well, we did it! I am so happy to announce that we hit our goal. To be fair, it was a small goal as we only realized that the Pittsburgh walk was one that we could attend just a little over two weeks ago. In fact, we went over our goal. We are currently, as of Friday morning, sitting at $170 when we had just hoped and dreamed to raise $100. We hit that because of the kindness of internet friends. We thank you from the bottom of our hearts.

Quite honestly, I’m pleased to be getting back into the yearly fundraiser for March of Dimes. We knew that when we went to conceive BigBrother (and were successful) that he ran the risk of being premature. In fact, due to my kidney disorder, all of my children faced that risk. As such, I felt that it was important to be involved with the March of Dimes walk. (Back then it was called WalkAmerica. Now it’s called the March for Babies.) And so, in 2005, I walked for the first time, just a few months pregnant with BigBrother.

See BigBrother?

See BigBrother? Kind of?

The following year, ecstatic that BigBrother had made it to full-term (38w4d), we knew we had to walk again. Of course, that full-term badge was hard fought. I was put on bed rest at 30 weeks during that pregnancy. In the end, my kidney was not very cooperative and I went toxemic, resulting in an induction and a difficult labor and delivery. However, BigBrother was born at a healthy 8 pounds, 8 ounces and was as healthy as healthy could be. I was very grateful for the knowledge and procedures that had helped us keep him in my womb and healthy until he needed to be delivered and so, we walked again. In fact, in 2006, I was the #3 fundraiser in our local county walk. (I have a plaque on my wall!) BigBrother walked with me and actually made it on the news. (It didn’t hurt that, at the time, I was still working for our local news station.)

Post-Walk Kisses

In 2007, I wasn’t allowed to walk. The pregnancy with LittleBrother started out complicated, eased up for a little bit and went back to being complicated until the end. Thankfully, once again thanks to the types of research that the March of Dimes does, he was born full-term (38w6d) and weighed a healthy 7 pounds, 7 ounces. I was so grateful. But we couldn’t walk in 2008 either. Due to my battle with post-partum depression, I couldn’t motivate myself to walk around the block, let alone raise money or walk three miles. (But that’s a different cause and a different post.) And so, we sat. And I felt horrible about it.

This year, I didn’t think we would be able to get involved either. When our local county’s walk took place, I was speaking in Cleveland at the National Adoption Conference. When I realized this conflict of time, I decided we would go another year without walking. I was upset about it but figured we’d donate our normal amount to someone else’s walk and all would be well with the world.

And then the word of Maddie spread like wildfire.

While we made appropriate donations, we still felt kind of helpless. The other bloggers started to band together. As March for Babies teams walking in Maddie’s honor and memory started to pop up all over the country, >another blogger made that information readily accessible. It was at that point that I learned my hometown (Pittsburgh) walk was on a weekend during which I was 100% free. I immediately signed up (even before I noticed that one of my favorite bloggers was also walking in that particular group). We made a goal and posted about it.

And here we are, on the eve of the walk. Walking not only for the healthy children I know and love but for the beautiful, amazing little girl taken far too soon.

Maddie

We’ll be leaving for The Farm this evening to stay with my parents so as to have a shorter drive in the morning. We’ll be meeting the Burgh Moms and Dads at 9:15 to get our purple shirts. Someone donated the money to purchase said shirts. I even purchased another two for TheBrothers even though LittleBrother will be swimming in his extra small. Our goal is to take a picture with the river in the background and send it as a thank you to our sponsors. I can assure you that one or both boys will be crying. That’s how these things go, of course.

It’s bittersweet, really. Getting to be involved with an organization we love so dearly is wonderful. Finally meeting someone I’ve known for years, someone who has sent me gifts, is totally awesome. Raising money to help mothers and babies is something I simply love doing. But thinking of the loss of Maddie, especially this weekend, is something I think we can all agree is difficult for any mother to imagine. My heart breaks when I think of Heather this weekend. I want to snuggle all of my children a little bit closer.

Sunday is actually my least favorite day of the year. However, starting tomorrow, I’ve decided to put a different spin on the day/weekend. I’ll tell you all about it on the (offending) day but know that I want all of you to have a beautiful Mother’s Day weekend. Even if you aren’t participating in a March for Babies walk this weekend, consider doing something for another mother, for another child.

And always keep marching on.

[If you're still interested in donating, you can do so at my page. Burgh Moms and Dads have raised a cumulative total, as of writing, of $4369 while our goal was $4500. Just a little bit of help? Yes?]

Words will never be enough.

A Balloon

Instead, the FireFamily released balloons this past Saturday for Maddie. We had talked about what we were doing with BigBrother ahead of time, that we were sending balloons to Maddie in heaven. And I’m glad we did it ahead of time…

Because as the wind swept those balloons away much more quickly than I had anticipated, I had to blink back the tears as I attempted to get a few photographs. I kept thinking, “No! Slow down! I just want a few more moments! I just need a few more moments.” And then, as I was snapping the pictures and those balloons kept racing away from us, I realized that’s likely how Maddie’s parents felt. Feel. I was overcome with the realities of the loss of such an innocent, beautiful life. I had no words left to share with my boys. I simply held my oldest son tightly as I struggled to carry him back to our truck. He’s far too big for me to carry him anymore…

But I just needed a few more moments. I figure there will never be enough moments to be had.

Today, on the day Maddie’s family is celebrating her life, we are wearing purple (clothes and on our blog) in honor and in remembrance. Today we continue to hug our boys just a little tighter while saying a prayer for those who know a loss that no one should ever have to know. Today we acknowledge that life is too fragile while simultaneously wanting to ignore that fact.

Today we thank the Spohr family for sharing Maddie with the rest of us.

As of late last night, we have decided to join the Burgh Moms & Dads March for Babies walk for Maddie on May 9, 2009. We have a small goal as we hadn’t planned on walking this year due to the fact that I’m speaking at a conference in Cleveland on the day of Columbus’ walk. However, I feel we need to ignore the crazy schedule we have starting on March 11th and join in the walk this year. We’ll be there. With purple on. Will you be there?

[As a reminder, you can still donate to the paypal account set up for the family to handle the costs associated with this sudden loss. You can also donate to the Spohr family's March for Babies walk to be held on April 25, 2009.]

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